AFMBD
Association Francophone de la Maladie de Blackfan-Diamond

Voici quelques propositions afin de vous aider à approfondir vos connaissances sur la maladie de Blackfan-Diamond.

 

alliance maladies rares www.alliance-maladies-rares.org

marih www.marih.fr

orphanet www.orpha.net/consor4.01/www/cgi-bin/?lng=FR

euroDBA http://www.eurodba.eu/

MDPH : www.mdph.fr

Diamond Blackfan Anaemia support group UK : diamondblackfan.org.uk

Diamond Blackfan Anaemia support group US: http://www.familyvillage.wisc.edu/lib_dba.htm

Diamond Blackfan Anaemia Foundation : dbafoundation.org

Diamond Blackfan Anaemia support group Italy : http://www.diamondblackfanitalia.org/